Since the last post, we've been back down for liver clinic checkups twice. Both times went well. Her bilirubin level is headed up with each set of labs and her albumin and INR levels are getting worse as well, so her PELD has now gone from 23 to 28 and now as of Friday 31. It was officially recertified at 31 so they should be receiving many more offers with such a high score.
She hasn't gained much weight, but they believe it is just due to additional fluid loss from her ascites. We are still on a high calorie diet and they told us to feed her however much she will eat. There was a ceiling on her intake for a couple of weeks, but they removed that since she seems to be doing and eating so well. She is filling out again so she is putting some weight on. Now that the fluid is gone, maybe it will translate into real weight gain before the next clinic checkup in 2 weeks.
BUT she is holding her own and doing as well as can be expected for now.
Milestones:
In the last couple of weeks, she got 2 teeth while at the hospital this last stay.
She has started eating some solids and is LOVING them. She gets so excited when she sees that spoon coming towards her.
She started rolling completely over. She's even figured out that she can get around a bit by rolling.
No comments:
Post a Comment